AT THE WATER’S EDGE:
LIVING LIFE AND LEARNING ALL I CAN ALONG THE WAY
rheumatoid disease
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This Little Piggy…
And this little piggy went “ow, ow, ow”all the way home… This winter, I’ve noticed a new phenomenon that is occurring in conjunction with my Raynaud’s attacks. You can read about my discovery of Raynaud’s Disease and The Mystery of the White Finger here. It seems that over the past couple of years, it has…
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Rheuminations on Phraseology & Semantics
Cats make good pets; peeves do not. It has come to my attention recently that I have a few pet peeves when it comes to some of the phraseology used in regards to rheumatoid disease. Of course, there is the obvious ever-present “a” word, and I am still hoping that more people will begin to…
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Groundhog Day is Now Rheumatoid Awareness Day
It’s February 2nd. Groundhog Day. And now, Rheumatoid Awareness Day! Today marks the first time ever that there has been a day set aside specifically to promote awareness of rheumatoid disease (previously known as rheumatoid arthritis). The Rheumatoid Patient Foundation (RPF) announced the establishment of this day last month, and has published numerous ways that…
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First Ever Rheumatoid Awareness Day
The Rheumatoid Patient Foundation (RPF) has announced the establishment of the first ever Rheumatoid Awareness Day to promote education and awareness of rheumatoid disease (aka rheumatoid arthritis). There has never before been an awareness day for RA, and this will be a huge step toward increased education among the public (See Also: RA Un-Awareness). In…
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Humira:1-Year Anniversary & The Wrist Test
It’s hard to believe, but it has now been a full year since I have been on Humira to treat my rheumatoid disease (i.e. rheumatoid arthritis). Click here to view all of my blog posts along this journey. I made the switch from Enbrel to Humira in December of 2011, after a period of elevated…
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Treating to Target: A Common Sense Approach?
One of the topics that was prevalent at this year’s ACR Annual Scientific Meeting was the concept of Treating to Target. This approach to rheumatology care involves identifying treatment goals for patients with rheumatoid disease and modifying treatments when the goals are not reached. For instance, if a patient is started on methotrexate to treat…
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ACR 2012 – Day 1 Update
Continuing the tradition of the escalator photo! I cannot believe how quickly the ACR Annual Scientific Meeting has come upon us, yet here I sit in my hotel room in Washington, DC with Day 1 already behind us! My adventure began yesterday at 4am, when I had to get up in order to make my…
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Rheum Vocabulary
For quite some time now, the online #rheum community has been creating their own language, including made up words and terms to describe our experiences with rheumatoid disease. Quite often these terms are punny and mildly humorous. Other times, these terms are downright hilarious. As I’ve already stated that I believe laughter is often the…
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Onward to Washington: ACR, RPF and a Video Contest
Last November, I spent a weekend in Chicago and was able to attend a brief part of the American College of Rheumatology’s Annual Scientific Meeting which was being held there. I spent a day working in the Exhibit Hall on behalf of the Rheumatoid Patient Foundation (RPF), met other patients with Rheumatoid Disease that I…
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Raynaud's Phenomenon: The Mystery of the White Finger
Hockey games can definitely induce Raynaud’s… For about as long as I can remember, my fingers have turned white when exposed to cold. My toes, too, actually. Sometimes the entire finger or toe; sometimes just part of it. They usually get at least a little numb, too. Sometimes it lasts for just a few minutes,…
At the Water's Edge 