AT THE WATER’S EDGE:
LIVING LIFE AND LEARNING ALL I CAN ALONG THE WAY
rheumatoid arthritis
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Humira – Week One (or My LAWs)
Today I have officially been on Humira for one week. In case you missed it, you can read about my switch from Enbrel to Humira to treat my rheumatoid arthritis here – and you can even see pictures of me taking my first Humira injection! Luckily, it’s only and every other week shot for now,…
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My First Humira Injection
I’m taking a bit of a photojournalistic approach for this post. Tom documented the process for my first Humira injection, so I figured I would share it. You can read about my switch from Enbrel to Humira to treat my rheumatoid arthritis here. Pouty face – time to inject myself with a new medicine Happy…
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A New Shield, A Better Shield?
I had a doctor’s appointment to see my rheumatologist on Tuesday. It had been six months since I had seen him last, and I knew we were going to be up for an interesting appointment. The last time I was in was shortly before our backpacking trip to Isle Royale. I was feeling pretty well…
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Merry Christmas to my #Rheum-Mates
For some reason my favorite Christmas song has always been It Came Upon a Midnight Clear. I’m not really sure why I liked it. I think because it had a serious message and just a bit of a different sound than other Christmas songs. The scene where the angels appear to the shepherds is also…
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RA Greeting Card
Prompt: Greeting card post! The greeting card industry is all about writing generally universal feelings in a presentable way that you can use to express yourself when you just can’t think of the words to say. Write a greeting card for someone in your community to help them express themselves about a new diagnosis, treatment,…
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It's Not RA…
Prompt: What is the most ridiculous thing you’ve heard about health or your condition? Was there any context? What did you think at the time you heard it – and what do you think of it now? I’ve heard some pretty ridiculous comments that have been told to other patients, but I was trying to…
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My Mascot – Platy
Prompt: My Mascot! Give your condition, community, or self a mascot. Who is it? What do they represent? What is their battle cry? Meet Platy. Platy is a platypus who is my mascot, cheerleader and super hero. He was entirely inspired by @unguidedmissile and @geeklygibby and he represents #rheum patients in way. The platypus is somewhat…
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Trust and Transparency
With RA, there are a lot of ups and downs. For many people, symptoms wax and wane in a series of flares (increased disease activity) and lulls (decreased disease activity). Personally, I don’t have a lot of ups and downs—or, at least, the ups and downs don’t go too far from my own “baseline” or…
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Laughing Out Loud
Prompt: LOL post. Write a post about a moment that made you laugh. Or a video, picture, blog post, or something else that made you. I am a huge fan of laughter. I mean, who doesn’t like to have fun? And laughter when you’re facing something tough sometimes really is the best medicine. It’s usually other…
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My First RA Post – Again.
Prompt: “Best of” post. Grab a post from your archives and repost it! Add a few sentences at the beginning to frame it. Why you chose it. Why you liked it. And why it should be shared again. Well, this is an interesting prompt since I’ve only recently started adding to my health-related blog posts. So,…
At the Water's Edge 